Ehlers-Danlos Syndromes (EDS) are numerous – 13 of them – varied and complex. They have earned their place here because Ehlers-Danlos is a neurodivergence. Two of the key features of Ehlers-Danlos are joint pain and joint hypermobility, also known as joint hypermobility syndrome.

This is relevant to neurodivergent people as we are more than twice as likely to have hypermobile joints, and associated pain, as neurotypical people, according to new research at Brighton and Sussex Medical School and it’s reported to be as high as 7.4 times more likely on the United States’ National Library of Medicine website.

EDS is a genetic abnormality that causes changes in collagen, thus affecting connective tissue that should be stabilising joints and organs. I’ve put a lot more detail on the symptoms of hEDS (hypermobile Ehler’s Danlos Syndrome) on the glossary page entitled joint hypermobilityYou will also find some basic tests you can do at home to decide whether you’d like to contact your GP for more support.

You will find more support and information about EDS from Ehlers-Danlos Support UK.